The RegistryNXT! system is down for maintenance.

Dear Registry Investigators and Site Staff,

The Rare Disease Registries will be implementing system updates for the RegistryNXT! portal and a CRF update for the Fabry Registry starting on Friday July 18th.

RegistryNXT! will undergo system updates of which the following will be visible in the RegistryNXT! portal:

The following CRF change is being implemented for Fabry Registry to reflect the change in standard of care for Fabry disease:

To implement these changes, RegistryNXT! (including Rave Data Entry) for all Registries (Fabry, Gaucher and Pompe) will be taken offline for approximately 3 days, starting at:

- UTC: Friday 18 July 4.00hrs / 4.00am
- US EDT: Friday 18 July 0.00hrs / 12.00am
- CEST (Paris): Friday 18 July 6.00hrs / 6.00am
- SGT (Singapore): Friday 18 July 12.00hrs / 12.00pm

We expect that the RegistryNXT! system will be back online Monday, July 21st.

In case of any further questions please do not hesitate to reach out to your CRA.

Kindest regards,
On behalf of the Rare Disease Registries