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Treating & Researching Fabry Disease

A disease registry can help improve understanding of the disease by enabling physicians to:

Contribute and Share Data

Input participating patient data and have the ability to report on and share that data with other practitioners or your patient in near real time.

Gain Insight

Understand the variable disease for each patient and assess their progress compared to other patients through aggregate reporting.

Improve Research Globally

By contributing data to the Fabry Disease Registry, you will contribute to aggregate analysis to help understand progression of the disease and ultimately improve patient care.

The Fabry Registry is not just for Medical Professionals.
Find out how the Registry can help Fabry Disease Patients »