A disease registry can help improve understanding of the disease by enabling physicians to:
Input participating patient data and have the ability to report on and share that data
with other practitioners or your patient in near real time.
Understand the variable disease for each patient and assess their progress
compared to other patients through aggregate reporting.
By contributing data to the Fabry Disease Registry, you will contribute to aggregate analysis to help understand progression of the disease and ultimately improve patient care.
Operated and hosted
by Digital Infuzion, Inc.