Registration

Privacy policy and Notice of Information Practices

Information RegistryNXT! Collects

Personally Identifiable Information

Participating Medical Personnel: to registry, you voluntarily provide your first and last name, email address, phone number and address of site location to RegistryNXT!.

Patients: to enroll in the Registry, your Doctor sent your initials, date of birth and gender to the Registry (if allowed by the law where you live).  Your doctor may send other medical information to the Registry, such as information related to your disease (including signs and symptoms, medical history), any treatment you may be receiving, laboratory and other test results, and other health information about you.Together, the information that is sent to the Registry about you is referred to as your “Health Information.”  This information is stored on RegistryNXT!, the web platform of Sanofi Genzyme that hosts registries on Gaucher, Fabry, Pompe and MPSI disease (each a "Registry" and, collectively, the "Registries"). To protect your Health information, your name is not collected by the Registry.  Instead, you will be identified by a patient number and your initials. In some countries, substitute initials (such as A.Z.) may be used instead of your real initials. In some countries, the date and month of your birth may be left unknown. For additional information on how your Health Information is used, refer to the Informed Consent and Authorization for the Disclosure of Health Information to a Genzyme Rare Disease Registry document you signed to participate in the Registry.

Cookies and Other Non-Personally Identifiable Information

We collect information about your usage of our site through cookies and similar technology. There are two types of cookies: session cookies (non persistent cookies) and persistent cookies. Session cookies temporarily store non-personally identifiable information about your visit to our website in your computer’s memory. The cookie is deleted as soon as you close your browser. Persistent or permanent cookies will uniquely identify your browser and will permanently save in your computer’s memory information requested by the website.

On some of our websites, we also use pixels, or transparent GIF files. These GIF files are provided by our ad management partner, DoubleClick. These files enable DoubleClick to recognize a unique cookie on your Web browser, which in turn enables us to learn which advertisements bring users to our website. The cookie was placed by us, or by another advertiser who works with DoubleClick.

With both cookies and transparent GIF files, the information that we collect and share is anonymous and not personally identifiable. It does not contain your name, address, telephone number, or email address.

We also track the total number of visitors to our website, the number of visitors to each page of the website, and the domain names of our visitors’ Internet service providers.  On certain Sanofi Genzyme websites, we may also ask users who have opted to receive information to complete a survey.  No personally identifiable information is gathered in any of these processes.

How Sanofi Genzyme Uses This Information

Personally Identifiable Information

This information may be used by Sanofi Genzyme personnel or agents of Sanofi Genzyme to obtain more information, to improve this site, or to provide you with information that you have requested or additional information which Sanofi Genzyme believes may be of interest to you.

Sanofi Genzyme does not sell any of your personally identifiable information for marketing or advertising purposes. Sanofi Genzyme reserves the right to monitor all and any data that are entered into RegistryNXT! and to correct data in accordance with Sanofi Genzyme’s data review standard operating procedures.

Cookies and Other Non-Personally Identifiable Information

Cookies allow us to bring you the content and features likely to be of greatest interest to you based on your previous activities on our site.  In Sanofi Genzyme sites that require passwords, you are giving us explicit permission to use a “persistent cookie,” which is a small data file that is generated when you enter your assigned user id and password and access the site. This file is saved in your computer’s memory, and enables your browser to access each page that is in the password-protected area.

Pixels, or transparent GIF files, are used to help us manage our online advertising.  For example, third party vendors, including Google, show Sanofi Genzyme ads on sites on the internet.  These vendors also use cookies to serve ads based on a user’s prior visits to Sanofi Genzyme’s website.

We use other non-personally identifiable information, including information obtained through surveys, to improve this site.

Storage and Transfer of Information

Sanofi Genzyme, or in some cases its agents, may store the personally identifiable data collected via this site in an electronic database. Sanofi Genzyme and its agents may also exchange such data with each other or with you over the internet or over intranet systems for the purposes of processing the data, mailing information to you in response to your request, or otherwise carrying out the services described above.  We may also release your personally identifiable data in response to a court order, subpoena, search warrant, or applicable law or regulation.

While Sanofi Genzyme makes every reasonable effort to protect the personally identifiable data collected through its websites, please be aware that there is always some risk involved when submitting data over the Internet. We cannot guarantee that our website is 100% safe from illegal tampering or “hacking.” Any data transmitted over the Internet may be at risk; however, once it is received at Sanofi Genzyme and entered into its database, it has the same protection that Sanofi Genzyme extends to its own confidential information.

Your Information Choices

Personally Identifiable Information

If at any time you wish to stop receiving emails or other communications from us, or if you have submitted personally identifiable information through our website and would like to have that information deleted from our records, please notify us.  You may also request access to personal data about you that Sanofi Genzyme holds and you may have the opportunity to request a correction or amendment to your personal data.

As a reminder to you when exchanging emails, any email that you send or receive on your employer’s email system may be the property of your employer. Consequently, your employer may have the ability to review your personal information sent via email.

Please note that although we attempt to adhere to requests to remove personal data from our records, it may not be possible to remove all copies depending on the manner in which the information was submitted to us.  In addition, we reserve the right not remove or amend information provided to us regarding an adverse drug effect and information that is otherwise required to be retained by law.

Cookies and Other Non-Personally Identifiable Information

Your Web browser can be set to allow you to control whether you will accept cookies, reject cookies, or to notify you each time a cookie is sent to you. If your browser is set to reject cookies, sites like ours that are cookie-enabled will not recognize you when you return to the site and some site functionality may be lost.

Users may opt out of Google’s use of cookies by visiting the Google advertising opt-out page.

For more information about how to opt out of Doubleclick, go to http://www.google.com/privacy_ads.html.  Users always have the option of declining to participate in any survey they receive from Sanofi Genzyme.

Links to Third Party Sites

As a convenience to our visitors, our sites currently contain links to a number of other (non-Sanofi Genzyme) sites that we believe may offer useful information. The privacy policy presented here does not apply to those sites. You should contact these sites directly for information on their privacy policies, confidentiality agreements, and data collection/distribution procedures.

Please note that linked non-Sanofi Genzyme sites may also use cookies. Sanofi Genzyme cannot control the use of cookies by these non-Sanofi Genzyme sites. In addition, when you link from a Sanofi Genzyme website to another website, that site may have the ability to recognize that you have come from a Sanofi Genzyme site. If you do not want any other websites to know that you have been on this website, we recommend that you do not use the links provided in our site.

Children’s Policy

Our websites are not intended or designed to attract children under the age of 13. We do not collect personal information from any person we actually know is a child under the age of 13.

Privacy Policy Updates

Any changes to this Privacy Policy will be posted on this page.  If a change to this Privacy Policy results in a materially different use of your personally identifiable information provided prior to the date of the change, you may opt out of such use by providing notice to Sanofi Genzyme.

This privacy policy only applies to websites linked to it.  A different privacy policy may apply to other Sanofi Genzyme websites you visit.

This privacy policy was last updated 10/2018.

REGISTRYNXT! TERMS OF USE

[Last Updated: October 15, 2018]

Welcome to RegistryNXT!, the web platform of Genzyme Corporation ("Sanofi Genzyme") that hosts registries on Gaucher, Fabry, Pompe and MPSI disease (each a "Registry" and, collectively, the "Registries"). RegistryNXT! incorporates both a reporting portal operated by Digital Infuzion and a data entry component operated by Medidata Solutions, Inc. ("Medidata"). These Terms of Use govern the access to and use of RegistryNXT! and are in addition to the Medidata terms of use that you will have had to accept in order to access the data entry component of RegistryNXT!.

RegistryNXT! is for use by physicians and authorized medical personnel (the "Participating Medical Personnel") and patients ("Patients") who take part in one of the Registries (collectively, "Users"). Registry participation by Participating Medical Personnel is also subject to the terms of a Registry protocol, including securing a specific Patient consent from each Patient. RegistryNXT! is restricted-access: in accordance with these Terms of Use, only Participating Medical Personnel and Patients who are appropriately invited by Participating Medical Personnel, may register to access and use RegistryNXT!. Registration for and use of RegistryNXT! by Users is entirely voluntary.

• Participating Medical Personnel may enter data on RegistryNXT!, review and query data stored on RegistryNXT!, and generate reports from RegistryNXT!; and
• Patients may review customized reports generated and shared by Participating Medical Personnel and may view a list of Registry members who are part of the Participating Medical Personnel’s team.

Accordingly, these Terms of Use are divided into sections applicable to different classes of User.

Terms Regarding Use of RegistryNXT! Applicable to All Users

1. Use of RegistryNXT!.Access and use of RegistryNXT! is subject to these Terms of Use. By registering for and using RegistryNXT!, you accept, without limitation or qualification, these Terms of Use and you acknowledge that you have read, understood and agree to these Terms of Use. If you do not agree to these Terms of Use, you may not register for, access or use RegistryNXT!. Sanofi Genzyme may modify these Terms of Use at any time, at its discretion and without notice, and modifications are effective upon being posted on RegistryNXT!. You are responsible for reviewing these Terms of Use periodically to ensure that you are fully informed of any changes to them and your continued use of RegistryNXT! binds you to the changes made. When Sanofi Genzyme does effect a change, it will update the "Last Updated" notice appearing at the beginning of these Terms of Use.   In the event of any conflict between these Terms of Use and of any other agreement, these Terms of Use shall prevail  with respect to access to and use of data entered into RegistryNXT!.
2. Sanofi Genzyme’s Use of Information Stored in RegistryNXT!.You acknowledge and agree that Sanofi Genzyme may access and use information that is entered into and/or stored in RegistryNXT! in accordance with the Rare Disease Registry Protocol and Informed Consent and Authorization for the Disclosure of Health Information to a Genzyme Rare Disease Registry and the Privacy Policy and Notice of Information Practices available here, which is incorporated by reference herein.
3. Indemnification.You agree to indemnify, defend and hold harmless Sanofi Genzyme and any of its affiliated companies, officers, directors, employees, agents, suppliers and third party partners from and against all losses, expenses, damages and costs, including reasonable attorneys’ fees, resulting from your use of RegistryNXT!, including, without limitation, any violation by you of these Terms of Use or the submission of any inaccurate or incorrect information or information whose submission is in breach of applicable data privacy or other relevant laws.
4. Data Privacy and Data Protection. The operation of RegistryNXT! may be subject to applicable European, United States, and potentially other data privacy laws. Some of the Patient information that Participating Medical Personnel enter into RegistryNXT! could constitute protected personally identifiable information, or personal data, under such laws. In addition to obtaining consents from Patients in accordance with Section 10 ("Third Party Consents"), before using RegistryNXT! and entering any data into RegistryNXT!, Participating Medical Personnel must familiarize themselves with any legal obligations and responsibilities applicable to them arising under their own data privacy or related laws. Sanofi Genzyme will not be held responsible for any loss, harm or damage arising from or related to the failure of Participating Medical Personnel to abide by any such obligations and responsibilities. Sanofi Genzyme seeks to take reasonable measures to ensure that its processing of any personal data complies with applicable data privacy laws, including by adopting reasonable technological and organizational measures to ensure the security and confidentiality of any personal data that are stored on RegistryNXT!. However, no data transmission or storage system can be guaranteed to be 100% secure. If you have reason to believe that your interaction with us is no longer secure, please immediately notify us. All Users who have access to Patient clinical data must be approved by Sanofi Genzyme Registry personnel and/or the Participating Medical Personnel managing a patient.

Terms Regarding Registration Applicable to All Users

5. Registration and Privacy.Information that you provide to Sanofi Genzyme about yourself when registering to use RegistryNXT! must be accurate and truthful, and you accept any and all liability for any inaccurate or untruthful information that you provide, except that Patients register with an alias in order to protect their privacy. Note that Patients will need a valid e-mail address in order to register, as invitations will be sent from Participating Medical Personnel via e-mail, which will contain a personalized link for the invitee to click on in order to register. Accordingly, Digital Infuzion, the primary technical provider, and its agents, will have access to the e-mail addresses for all Users for the purpose of assistance with passwords and for the sending of system notification updates. Sanofi Genzyme respects the privacy of all Users, and you should refer to the Sanofi Genzyme Privacy Policy applicable to RegistryNXT!, which is available here to learn more about the collection and use of your personal information.
6. User Account, Password and Security.All Users, regardless of role, must register and select a username, password, and a security question. You are entirely responsible for maintaining the confidentiality of your ID, password and account, and for taking reasonable precautions to prevent the inadvertent disclosure of your ID, password or account information. Furthermore, you should not share your user ID or password, even with other members of your staff or practice (for Participating Medical Personnel) or with family members or friends (for all Users). For Participating Medical Personnel, each member of your staff or practice will need to be separately enrolled in RegistryNXT! and obtain his/her own user ID and password. You are entirely responsible for any and all activities that occur under your account. You agree to notify Sanofi Genzyme immediately of any unauthorized use of your account or any other breach of security. Sanofi Genzyme will not be liable for any loss that you may incur as a result of someone else using your ID, password or account, either with or without your knowledge. You may be held liable for any harm or loss (including legal fees related to same) incurred by Sanofi Genzyme or another party due to someone else using your ID, password or account. Sanofi Genzyme may suspend or terminate your access to RegistryNXT! if Sanofi Genzyme believes your account is being used by an unauthorized person or if you have not complied with these Terms of Use or for any other reason in Sanofi Genzyme’s sole discretion. You may not use anyone else’s account at any time, without the express permission of the account holder.
7. E-signatures.In order to become authorized to use RegistryNXT!, you may be asked to furnish information that constitutes an electronic signature. You accept that your electronic signature is legally binding and equivalent to your written signature.

Additional Terms Regarding Use Applicable to Participating Medical Personnel

8. Use of RegistryNXT! by Participating Medical Personnel.You, and specifically not Sanofi Genzyme, are solely responsible for any use that you make of information stored in or generated from RegistryNXT!, and you agree that no clinical decisions are to be based solely on RegistryNXT! and RegistryNXT! is not a substitute for your own clinical judgment. You are also solely responsible for complying with all laws, regulations and licensing requirements applicable to your delivery of healthcare services. In using RegistryNXT!, you agree that neither Sanofi Genzyme nor any other party is or will be liable or otherwise responsible for any decision made or any action taken or any action not taken due to your use of any information presented through RegistryNXT!. Any record generated from RegistryNXT! shall not function as a medical record for any Patient; under no circumstances should such records or reports be considered as replacements of or substitutions for a medical record of any Patient.
9. Information Participating Medical Personnel Enter into RegistryNXT!.You may only enter information into RegistryNXT! that relates to the Registries, and you accept any and all liability for any optional information that you enter, for example, care team contacts or report comments. You must not enter any information that may breach applicable laws, including any data protection or privacy laws; Sections 4 ("Data Privacy and Data Protection") and 10 ("Third Party Consents") of these Terms of Use set out your obligations in this regard in more detail.
10. Third Party Consents. You may enter into RegistryNXT!personal information relating to a Patient only after securing the freely-given explicit consent of the Patient to do so. Please note, in some jurisdictions, including potentially your jurisdiction, Registry identification numbers might constitute personal information under applicable laws. When obtaining such consents, you must comply with any requirements arising under data privacy, health or related laws applicable to that patient’s data. This includes obtaining the Patient’s written consent and providing Patients with suitable informational disclosures concerning the processing of their data in connection with RegistryNXT!. It is a misuse of RegistryNXT! and a violation of these Terms of Use to enter information relating to a Patient who has not expressly consented to having their personal data entered into the Registry and processed in connection with RegistryNXT!. Sanofi Genzyme will not be held responsible for any loss, harm or damage arising from or related to your failure to obtain necessary consents from Patients to have information relating to them entered into or processed in connection with RegistryNXT!.
11. Responsibility for Patient use of RegistryNXT!.As a Participating Medical Personnel, you have the ability to invite your Patients to enroll in RegistryNXT!. Patients will only have access to customized reports specifically created and designated by you. You shall be solely responsible for verifying the identity of such invitees and for the disclosure of the Patient data to the Patients themselves, including any liability related to the disclosure of such data to the extent disclosure is not permissible under local law. Sanofi Genzyme may monitor who has access to particular Patient data stored on RegistryNXT! by user ID and may perform audits on such access. You shall be solely responsible for ensuring Patients understand the terms and conditions of RegistryNXT!, including the terms in Section 15  (“Use of RegistryNXT! by Patients; No Substitute for Professional Medical Advice and Treatment”) on these Terms of Use.
12. Exclusion of Liability.Any information and material entered by Participating Medical Personnel into RegistryNXT! is done at your own discretion and risk and you will be solely responsible for any damage to your computer system or loss, temporary or permanent, of data that results from the input of any such information or material or otherwise from using RegistryNXT!. Sanofi Genzyme does not represent or warrant that RegistryNXT! (or any updates) is compatible with any hardware or software versions or applications, including any specific versions of your phone, PDA, tablet, computer, or its specific operating system. Sanofi Genzyme may choose to provide updates or modify RegistryNXT! from time to time in its sole discretion.  Sanofi Genzyme does not represent or warrant that any future updates or modifications will provide the same functionality that is provided by the current version of RegistryNXT!.

Disclaimers, Exclusions and Other Important Terms Applicable to All Users

13. Disclaimer of Warranties.
    RegistryNXT! is provided on an "AS IS" and "AS AVAILABLE" basis. You agree that your access to and use of RegistryNXT! and the contents available therein is at your own risk.
    Although Sanofi Genzyme commits to use reasonable efforts to ensure that RegistryNXT! remains operational and accessible to Users, by registering for and using RegistryNXT! you accept that Sanofi Genzyme makes no express or implied warranties or representations of any kind as to the accuracy, content, completeness, reliability, operability, or legality of information contained within RegistryNXT!; or that RegistryNXT! will meet your particular business requirements, needs or expectations; or that RegistryNXT! will be uninterrupted, timely, error-free or continuously available; or that RegistryNXT! will not cause you any loss, interruption of business, interruption of research or treatment, or any direct, indirect, special, incidental or consequential damages of any kind (including lost profits) regardless of the form of the action whether in contract or in tort (including negligence). Sanofi Genzyme and/or its representatives or suppliers may, at any time, alter or interrupt, temporarily or permanently, all or part of RegistryNXT! to undertake maintenance and/or make improvements and/or changes to the platform. Sanofi Genzyme is not responsible for any alteration, suspension or interruption of RegistryNXT!.
14. Exclusion of Liability.Any use that you make of information stored within RegistryNXT! or generated in reports is done at your own discretion and risk. Neither Sanofi Genzyme, nor any party involved in creating, producing or delivering RegistryNXT!, shall be liable for any damages, including without limitation, direct, indirect, special, incidental or consequential damages of any kind (including lost profits) regardless of the form of the action whether in contract or in tort (including negligence), arising out of access to, use of or inability to use RegistryNXT!, or regarding any use of information stored within RegistryNXT! or generated in reports. Please note that some jurisdictions may not allow the exclusion of implied warranties, so some of the above exclusions may not apply to you. Check your local laws for any restrictions or limitations regarding the exclusion of implied warranties.
15. Use of RegistryNXT! by Patients; No Substitute for Professional Medical Advice and Treatment. REGISTRYNXT! AND ANY INFORMATION PRESENTED BY, STORED ON, GENERATED BY OR RECEIVED THROUGH REGISTRYNXT! ARE NOT, AND ARE NOT INTENDED TO BE A SUBSTITUTE FOR, PROFESSIONAL MEDICAL ADVICE, JUDGMENT, DIAGNOSIS, OR TREATMENT. PATIENTS SHOULD ALWAYS SEEK THE ADVICE OF A DOCTOR OR OTHER QUALIFIED HEALTHCARE PROVIDER WITH ANY QUESTIONS REGARDING A MEDICAL CONDITION. NEVER DISREGARD PROFESSIONAL MEDICAL ADVICE OR DELAY IN SEEKING IT BECAUSE OF SOMETHING READ OR LEARNED THROUGH THE USE OF REGISTRYNXT! OR ANY INFORMATION STORED ON, GENERATED BY OR RECEIVED THROUGH REGISTRYNXT!. USE OF THE APPLICATION DOES NOT CREATE AN EXPRESS OR IMPLIED PHYSICIAN-PATIENT RELATIONSHIP.  Patients should consult health care providers prior to making any lifestyle or treatment changes. Healthcare providers are the single best source of information regarding health. Patients should consult health care providers if they have any questions about health or treatment.
16. Non-Confidential Information.Subject to any protections that might be extended under the Sanofi Genzyme Privacy Policy applicable to RegistryNXT! available here, any communication that you send to us via the Internet is and will be deemed to be non-confidential and Sanofi Genzyme shall have no obligation of any kind with respect to such information, except as contained in the applicable Registry Protocol. Sanofi Genzyme shall be free to use any ideas, concepts, know-how or techniques contained in such communication for any purpose whatsoever, including but not limited to, researching, developing, testing, manufacturing and marketing products.
17. Trademarks.All product names, whether or not appearing in large print or with the trademark symbol, are registered trademarks, trademarks or trade names of Sanofi Genzyme, its affiliates, related companies or its licensors or joint venture partners, unless otherwise noted. The use of these trademarks or any other materials, except as permitted herein, is expressly prohibited and may be in violation of copyright law, trademark law or other proprietary rights of Sanofi Genzyme.
18. Intellectual Property.The contents of RegistryNXT! are subject to copyright protection. Copyright 2018 Genzyme Corporation. All rights reserved. Sanofi Genzyme or its licensor is the owner of all copyright, trademark, patent, trade secret, database and other proprietary rights in and to RegistryNXT!and the Software (defined below). Subject to your prior acceptance of and your ongoing compliance with these Terms of Use, Sanofi Genzyme grants you a limited, revocable, nontransferable, non-assignable, non-sublicensable, nonexclusive license to use RegistryNXT! solely for your non-commercial use, subject to the conditions and within the limits described in these Terms of Use. The contents may not be copied other than for non-commercial individual reference with all copyright or other proprietary notices retained, and thereafter may not be recopied, reproduced or otherwise redistributed except where necessary in connection with your professional healthcare related services and research. Except as expressly provided above, you may not otherwise copy, display, download, distribute, modify, reproduce, republish or retransmit any information, text or documents or any portion thereof in any electronic medium or in hard copy, or create any derivative work based on such images, text or documents, without the express written consent of Sanofi Genzyme. Nothing contained herein shall be construed as conferring by implication, estoppel or otherwise any license or right under any patent or trademark of Sanofi Genzyme, or any third party.  From time to time, you or other Users may provide us with feedback on recommended changes and/or corrections. Such recommendations are sometimes accepted if they fit in with our overall product roadmap. If you provide such feedback, you warrant that it not include any person or entity’s proprietary information. You also fully agree that Sanofi Genzyme is not obliged to use or act on this feedback and even if does, it has full, royalty-free, perpetual, irrevocable, transferable and global license to use such feedback.
19. Void Where Prohibited.RegistryNXT! and its contents are intended to comply with the laws and regulations of the Commonweath of Massachusetts, United States. Other countries may have laws, regulatory requirements and medical practices that differ from those in the Commonwealth of Massachusetts, United States. Sanofi Genzyme reserves the right to limit use of RegistryNXT! to any person, geographic region or jurisdiction.
20. Third Party Web Sites.RegistryNXT! contains links to other World Wide Web sites and resources produced by Sanofi Genzyme’s various operating divisions and affiliates, as well as independent third parties unaffiliated with Sanofi Genzyme. Such links are provided for your reference only. Sanofi Genzyme does not control such web sites, and is not responsible for their content. Sanofi Genzyme’s inclusion of links to such web sites does not imply any endorsement of the material on such web sites or any association with their operators, and your access and use of such web sites, including information, material, products and services therein, is solely at your own risk. Sanofi Genzyme makes no representation or warranty as to any third party content, products or services, and you agree that Sanofi Genzyme shall not be responsible or liable, directly or indirectly, for any damage or loss caused or alleged to be caused by or in connection with use of or reliance on any such third-party content, products or services available on or through any such site or resource. Once on another web site, you should read that web site’s privacy policy before disclosing any personal information.
21. Software Use.Use of RegistryNXT! may entail your installing, copying, downloading, accessing or otherwise using software products owned by or proprietary to Sanofi Genzyme or its licensors (the "Software"). Users are authorized to install, use, access, display or run the Software only in connection with their use of RegistryNXT!, and for no other purpose. You may not reverse engineer, decompile, or disassemble the Software. You may not, nor permit others to, copy or transfer the Software; distribute, sell, rent, loan, lease, sub-license or otherwise deal in the Software; alter, adapt, merge, modify or translate the Software in any way or for any purpose, including, without limitation, for error correction; remove, change or obscure any product identification or notices of proprietary rights and restrictions on or in the Software. Without prejudice to any other rights it may have, Sanofi Genzyme may revoke your right to use the Software if you do not abide by the terms and conditions contained in this Section.
22. Governing Law and Jurisdiction.These Terms of Use shall be governed by the laws of the Commonwealth of Massachusetts, United States, without regard to its conflicts of laws principles. Any legal action or proceeding related to RegistryNXT! shall be brought exclusively in a court of competent jurisdiction sitting in the Commonwealth of Massachusetts, United States.
23. Miscellaneous.If any provision of these Terms of Use is held to be unlawful, void or unenforceable, then such provision shall be enforced to the extent permissible, and/or will be severable without affecting the enforceability of all remaining provisions.  Failure by Sanofi Genzyme to prosecute any right with respect to a default hereunder will not constitute a waiver by Sanofi Genzyme of the right to enforce rights with respect to the same or any other breach.
24. RegistryNXT! Transferability.Sanofi Genzyme retains various technology partners to operate the RegistryNXT! system on its behalf. These include Digital Infuzion, Inc. and Medidata Solutions, Inc., who maintain secure hosting services. Sanofi Genzyme also reserves the right to sell, assign or otherwise transfer operation and control of RegistryNXT! or any individual Registry to a third party at some future point in time. These Terms of Use, and any rights and licenses granted hereunder, may not be transferred or assigned by you.
25. Termination. Your rights under these Terms of Use will automatically terminate if you fail to comply with any term of these Terms of Use. In the case of termination, you must cease all use of RegistryNXT!. Sanofi may immediately revoke your access to RegistryNXT!. Sanofi’s failure to insist upon or enforce your strict compliance with these Terms of Use will not constitute a waiver of any of its rights.
26. Survival. The terms of these Terms of Use apply to those obligations that survive any cancellation, termination, or rescission; namely, obligations relating to privacy and intellectual property, limitation of liability, warranties, and disclaimer of warranties.
27. Contact Details. If you are a Participating Medical Personnel and have questions about your use of RegistryNXT!, please write to us via the Contact Us webpage. If you are a patient, we recommend that you contact your treating physician who participates in the Registry in the first instance.