A disease registry can help improve understanding by enabling physicians to:
Input participating patient data and have the ability to report on and share that
data with other practitioners or your patient in near real time.
Understanding the variable disease for each patient and assess their progress compared
to other patients through aggregate reporting.
By contributing your data to the LSD Registries, you will contribute to aggregate
analysis to understand progression of the disease and ultimately improve patient
Dear RegistryNXT! user,
The RegistryNXT! platform will be upgraded in June 2015 to support the following enhancements and features: improved website design and navigation, advanced analytics, higher flexibility for reporting and patient engagement through ePRO. This technology requires that you use Internet Explorer 9 (IE9) or higher, Chrome or Firefox as your browser to access RegistryNXT! come June 2015.
To assess the impact this will have on RegistryNXT! users we kindly request you to answer the three questions below as applicable.
What is the primary browser you currently use at your Hospital/Institution for accessing RegistryNXT!:
Internet Explorer 8 (IE8) or lowerInternet Explorer 9 (IE9) or higherChromeFirefoxOther
For instructions on how to locate the version of the browser you are using,click here
If you use IE8 (or lower), do you have the capability to update the browser or switch to Chrome or Firefox?
How long do you think it will take for you to update the browser to IE9 (or higher) or switch to Chrome or Firefox?
If you have any questions please email or call your Registry contact or the RegistryNXT! Helpdesk at firstname.lastname@example.org or by phone at 877‐220‐0139 (North America) or +800‐1475‐1475 (International).
Thank you for your continued commitment to the Rare Disease Registries,
The RegistryNXT! Team
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