Home > Pages > Home.aspx  

Treating & Researching Lysosomal Storage Disorders

A disease registry can help improve understanding by enabling physicians to:

Contribute and Share Data

Input participating patient data and have the ability to report on and share that data with other practitioners or your patient in near real time.

Gain Insight

Understanding the variable disease for each patient and assess their progress compared to other patients through aggregate reporting.

Improve Research Globally

By contributing your data to the LSD Registries, you will contribute to aggregate analysis to understand progression of the disease and ultimately improve patient care.

The LSD Registries are not just for Medical Professionals.