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Understanding Gaucher Disease


The Gaucher Registry is the largest observational study of patients with Gaucher disease in the world. The data from patients from over 60 countries are being used to increase knowledge about Gaucher disease to improve outcomes for this rare disorder.

Treating & Researching Gaucher Disease

A disease registry can help improve understanding by enabling physicians to:

Contribute and Share Data

Input participating patient data and have the ability to report on and share that data with other practitioners or your patient in near real time.

Gain Insight

Understanding the variable disease for each patient and assess their progress compared to other patients through aggregate reporting.

Improve Research Globally

By contributing your data to the ICGG Gaucher Registry, you will contribute to aggregate analysis to understand progression of the disease and ultimately improve patient care.

The Gaucher Registry is not just for Medical Professionals.
Find out how the Registry can help Gaucher Disease Patients »