A disease registry can help improve understanding by enabling physicians to:
Input participating patient data and have the ability to report on and share that data
with other practitioners or your patient in near real time.
Understanding the variable disease for each patient and assess their progress
compared to other patients through aggregate reporting.
By contributing your data to the ICGG Gaucher Registry, you will contribute to aggregate
analysis to understand progression of the disease and ultimately improve patient care.
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by Digital Infuzion, Inc.